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'''Access to disability benefits''' can be difficult for patients with [[ME/CFS]], even though many countries including the [[United States|US]] and [[United Kingdom]], accept ME/CFS claims for sickness or disability payments. This difficulty is due to a range of factors including [[stigma and discrimination|discrimination]], poor understanding by [[primer for doctors and researchers|medical professionals]] and the public, and the [[fluctuating illness|fluctuating nature]] of the condition.<ref name="Collapse"/><ref name="Stat2018"/> ==UK== *A 2015 report by [[Action for ME]] found that despite 97% of patients experiencing difficulty with two or more daily activities listed in the Care Act 2014 for England, only 16% had received social care assessments, and only 6% had been awarded a care package.<ref name="Collapse">{{Cite web | website = [[Action for ME]] | access-date = 2022-04-08 | title = Close to Collapse | date = Nov 2015 | url = https://www.actionforme.org.uk/uploads/pdfs/close-to-collapse-report-UPDATED.pdf}}</ref> *"Barriers to self-referral and fair assessment included: **lack of clear information about social care process and entitlements (58% of respondents) **[[Cognitive dysfunction|cognitive]] and communication difficulties preventing engagement with social care processes (47% of respondents) **social care processes ill-adjusted to the very [[lack of stamina|poor stamina]] of people with M.E./CFS **misunderstanding, misinformation and [[stigma and discrimination|stigma]] surrounding the [[Definitions of myalgic encephalomyelitis and chronic fatigue syndrome|label of M.E./CFS]] acted as a deterrent to asking for help for 38% of respondents and was also perceived to impact on the fairness of assessments and the type of support provided."<ref name="Collapse"/> ==US== The [[United States]] has [https://www.ssa.gov/ssi/ Social Security Insurance]/[https://www.ssa.gov/disability/ Social Security Disability] '''(SSI/SSD).''' [[Long Term Disability]] '''(LTD)''' is available through private insurance companies and many businesses offer this insurance to their employees. ''Please Note'': The following is NOT legal advice and it should not be relied upon in taking steps for a disability case. Only the [[Social Security Administration]] (SSA) and a disability lawyer can provide the most up to date and the correct legal avenue for bringing a disability case.<embedvideo service="youtube" dimensions="400" alignment="center" container="frame" description="''Preparing For Your Social Security Disability Hearing: What To Expect'' By Michles Booth (2015)">https://www.youtube.com/watch?v=5puJl5Ndt-g</embedvideo> ==Learn more== * [https://www.meaction.net/2017/04/17/the-sleepy-girl-guide-to-social-security-disability-u-s/ The Sleepy Girl Guide To Social Security Disability (U.S.)]<ref>{{Cite web | url = https://www.meaction.net/2017/04/17/the-sleepy-girl-guide-to-social-security-disability-u-s/ | title = The Sleepy Girl Guide to Social Security Disability (U.S.) | last = Silver | first = Lily | date = 2017-04-17 | website = #MEAction|language=en-US| archive-url = | archive-date = |url-status = | access-date=2019-02-02}}</ref> * [https://www.meaction.net/2018/06/04/victory-for-me-disability-claim-court-upholds-plaintiffs-lawsuit-after-being-denied-disability/ Victory For ME Disability Claim – U.S. Court Upholds Plaintiff's Lawsuit After Being Denied Disability]<ref name="Vastag"/> :[[Brian Vastag]], who was originally denied disability benefits, was able to prove his [[post-exertional malaise]] (PEM) was a severe symptom causing disability with a [[Two-day cardiopulmonary exercise test]] (CPET). [[qEEG]] and [[Cognitive dysfunction|cognitive]] tests revealed he had "significant problems with [[Visual dysfunction|visual perception]] and analysis, scanning speed, attention, visual motor coordination, motor and mental speed, [[Memory problems|memory]], and [[Word-finding problems|verbal fluency]]."<ref name="Vastag">{{Cite web | url = https://www.meaction.net/2018/06/04/victory-for-me-disability-claim-court-upholds-plaintiffs-lawsuit-after-being-denied-disability/ | title = Victory for ME Disability Claim - U.S. Court Upholds Plaintiff's Lawsuit After Being Denied Disability | last = Tillman | first = Adriane | author-link = | date = 2018-06-04 | website = #MEAction|language=en-US| archive-url = | archive-date = |url-status = | access-date=2019-02-02}}</ref><ref name="Stat2018">{{Cite web | url = https://www.statnews.com/2018/07/19/chronic-fatigue-syndrome-insurers-disability/ | access-date = 2022-04-08 | title = The medical community is changing its mind on chronic fatigue syndrome. Why aren’t insurers?| first = Steven | last = Lubet | author-link = Steven Lubet | first2 = David | last2 = Tuller | author-link2 = David Tuller| publisher = STAT News | date = Jul 19, 2018}}</ref> ==See also== * [[Fibromyalgia disability process]] *[[Social Security Administration]] (US) *[[Department for Work and Pensions]] (UK) *[[National Institute for Health and Care Excellence|NICE (UK)]] *[[Workwell Foundation]] *[[Stigma and discrimination]] *[[Ethical issues]] ==References== {{Reflist}} [[Category:Core topics]] [[Category:Social issues]] [[Category:Ethics]] [[Category:Disability]]
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