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ACT UP
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'''ACT UP''', an acronym for '''AIDS Coalition to Unleash Power''', is an international [[direct action]] advocacy group dedicated to ending [[HIV/AIDS|AIDS]]. Its role in the transformation of HIV/AIDS research and treatment is often cited as a potential advocacy model for ME/CFS.<ref>{{Cite journal | last = Maxmen | first = Amy | author-link = | date = 2018-01-03 | title = A reboot for chronic fatigue syndrome research | url = http://www.nature.com/articles/d41586-017-08965-0 | journal = Nature|language=EN | volume = 553 | issue = | pages = 14|doi=10.1038/d41586-017-08965-0|quote=In one column from 1998, the co-founder of an ME/CFS organization reports on a conference on the ailment in Boston. She notes that someone from ACT UP, a group known for driving research on HIV, was in attendance, 'and may show us how to get more attention for the disease'.|via=}}</ref><ref>{{Cite web | url = https://www.meaction.net/2016/02/17/qa-about-patient-involvement-act-up-and-rfas-with-dr-nath/ | title = Dr Nath on ACT UP and patient involvement in ME/CFS research | last = | first = | author-link = | date = 2016-02-17 | website = #MEAction|language=en-US|archive-url=|archive-date=|url-status= | access-date = 2019-04-20|quote=[Y]ou know I [Dr. [[Avindra Nath]]] grew up in the early AIDS epidemic βand I saw interaction with ACT UP and other patient forums whereby they had a great impact on the way disease was handled β treated β and moved the federal government to make changes at every level.}}</ref> ME patient-advocate [[Terri Wilder]] was an activist with ACT UP in New York before her ME diagnosis in 2016.<ref>{{Cite web | url = http://www.thebody.com/content/81016/people-with-chronic-fatigue-millionsmissing.html | title = Using Lessons From HIV Activism, People With 'Chronic Fatigue Syndrome' Fight for the #MillionsMissing | last = Ford | first = Olivia G. | author-link = | date = May 9, 2018 | website = TheBody.com|archive-url=|archive-date=|url-status= | access-date = 2019-04-20}}</ref> Journalist and public health expert [[David Tuller]], DPH, also has a background as an ACT UP activist, including being among those arrested at the first Wall Street ACT UP action in 1987.<ref>{{Cite web | url = http://mpetrelis.blogspot.com/2013/05/jay-blotchers-act-up-friends-reunion-in.html | title = Jay Blotcher's ACT UP & Friends Reunion in San Francisco | last = Petrelis | first = Michael | author-link = | date = May 21, 2013 | website = Petrelis Files|language=en|archive-url=|archive-date=|url-status= | access-date = 2019-04-20|quote=[O]ur friend David Tuller. Back in 1987 at ACT UP's first demonstration on Wall Street, he was among the arrestees...the Wall Street 17}}</ref><ref>{{Cite web | url = https://www.omf.ngo/2016/12/28/honoring-david-tuller-for-mecfs-reporting/ | title = Honoring David Tuller for ME/CFS Reporting | date = 2016-12-28 | website = Open Medicine Foundation|language=en-US | access-date = 2019-04-20}}</ref> ==Online presence== * [https://actupny.com/ Current website] * [http://www.actupny.org/ Historical website] ==See also == *[[David Tuller]] *[[ME activists and advocates]] ==Learn more== * [https://surviveaplague.com/ ''How to Survive a Plague''] (book and 2012 documentary) * [https://en.m.wikipedia.org/wiki/Direct_action Wikipedia article on direct action] ==References== {{reflist}} [[Category:Patient groups]] [[Category:Protests]] [[Category:Advocacy and fundraising initiatives]]
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