25 Percent ME Group
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
The 25% ME Group is a UK support group set up to care for the most severely affected ME patients.[1] They also founded the annual Severe ME Awareness Day on August 8th.[2]
Aims[edit | edit source]
The 25% M.E. Group exists to support all who have the severe form of M.E. and those who care for them. This includes people who are housebound, bedbound and wheelchair users.[3]
Funding[edit | edit source]
The group relies on funding through individual donations.[4] It is a registered charity (#SC034265) with the Scottish Charity Regulator.
Notable People[edit | edit source]
- Dr Byron Hyde is patron
- Dr Nigel Speight is medical advisor
- Dr Vance Spence is scientific advisor
- Prof Malcolm Hooper is MCS scientific advisor
- Dr Betty Dowsett was formerly medical advisor[5]
History[edit | edit source]
PACE Trial[edit | edit source]
On February 10, 2016 an open letter was submitted to Queen Mary University London requesting compliance with Freedom of Information request for release of PACE trial data.[6]